Narrative interviews to assess quality of life in Peritoneal Dialysis

Keywords: narrative interview, quality of life, peritoneal dialysis, home dialysis

Abstract

It has been found that people undergoing dialysis have a lower quality of life than the rest of the population. The aim of dialysis is to improve physical health, but also well-being.


We were interested in the perception of the quality of life of patients undergoing Peritoneal Dialysis. We used the narrative interview method to collect their feelings, their daily experience, and their impressions about their care. We conducted four in-depth interviews, following the principle of theoretical data saturation, with adults treated at the Hospital of Nice.


These interviews indicated that Peritoneal Dialysis rapidly improves physical and emotional health. Patients are satisfied with the technique, which allows them to return to a social, familial, and professional life.
However, they regret that it does not relieve them of dietary restrictions, especially on salt. Patients appreciate the temporary support of a private nurse, which is systematically offered by our center at the beginning of treatment. They wish the involvement of peers to benefit from their experience, explanations and practical demonstrations.


Quality of life is important to assess when choosing a renal replacement technique. Caregivers have to understand patients’ expectations and wishes in order to guide them towards the dialysis modality that suits their lifestyle and preferences best. This will improve treatment outcomes.

References

1. KDIGO 2012: Clinical practice guideline for the evaluation and management of chronic kidney disease. [En ligne].2012 [cité le 14 mai 2021]. Disponible : https://www.guidelinecentral.com/summaries/kdigo-2012-clinical-practice-guideline-for-the-evaluation-and-management-of-chronic-kidney-disease
2. Haute Autorité de Santé. Guide parcours de soins maladie rénale chronique de l’adulte. [En ligne].2012 [cité le 14 mai 2021]. Disponible : https://www.has-sante.fr/jcms/c_1241102/fr/guide-parcours-de-soins-maladie-renale-chronique-de-l-adulte
3. Chuasuwan A, Pooripussarakul S,Thakkinstian A,Ingsathit A,Pattanaprateep O. Comparisons of quality of life between patients underwent peritoneal dialysis and hemodialysis: a systematic review and meta-analysis . Health Qual Life Outcomes. 2020 Jun 18;18(1):191. doi: 10.1186/s12955-020-01449-2
4. Brown EA, Blake PG, Boudville N et al. : International Society for Peritoneal Dialysis practice recommendations: Prescribing high-quality goal-directed peritoneal dialysis.PDI 2020, Vol. 40(3) 244-253. DOI: 10.1177/0896860819895364 (Traduction française dans BDD : Dratwa, Max, et Christian Verger. 2020. « Recommandations De Pratique De La Société Internationale De Dialyse péritonéale: Prescrire Une Dialyse péritonéale De Haute Qualité dirigée Par Un Objectif ». Bulletin De La Dialyse à Domicile 3 (1), 5-18. DOI : 10.25796/bdd.v3i1.54453
5. Hineline PN. Narrative: Why It’s Important, and How It Works. Perspect Behav Sci. 2018 Nov; 41(2): 471–501 doi: 10.1007/s40614-018-0137-x
6. Fioretti C, Mazzocco K, Riva S, Oliveri S, Masiero M, Pravettoni G. Research studies on patients’ illness experience using the Narrative Medicine approach: a systematic review. BMJ Open 2016; 14; 6 (7) DOI: 10.1136/bmjopen-2016-011220
7. Mettifogo M, Burrai F., Dorigo V., Zampieri C. Strategies and effectiveness of narrative medicine in renal patients: a literature review. Part 1. G Tec Nefrol Dial 2017; 29 (4): 281-284. doi.org/10.5301/GTND.2017.17753
8. Makaroff KL, Sheilds L, Molzahn A. Stories of chronic kidney disease: listening for the unsayable. J Adv Nurs 2013; 69 (12): 2644-53. DOI: 10.1111/jan.12149
9. Covelli V,Figini L,Santangelo A,Memini F,Bonforte G. A Narrative Medicine Pilot Study Using the McGill Illness Narrative Interview (MINI) with Patients Suffering from Nephropathy and on Dialysis. Journal of Social Sciences and Humanities. Vol. 2, No. 3, 2019, pp. 62-65. 2019; 2(3): 62-65. [En ligne].2019 [cité le 14 mai 2021]. Disponible: http://www.aascit.org/journal/jssh /9310766.pdf ·
10. Coste J,Rouquette A,valderas J.M,Rose M,Leplège A.The French PROMIS-29. Psychometric validation and population reference values - 31/07/18 Doi : 10.1016/j.respe.2018.05.563
11. Hiramatsu T,Okumura S,Asano Y,Mabuchi M,Iguchi D,Furuta S. Quality of Life and Emotional Distress in Peritoneal Dialysis and Hemodialysis Patients Ther Apher Dial. 2020 Aug;24(4):366-372.doi: 10.1111/1744-9987.13450
12. Harwood L , Clark AM . Understanding pre-dialysis modality decision-making: A meta-synthesis of qualitative studies . Int J Nurs Stud. 2013 Jan;50(1):109-20. doi: 10.1016/j.ijnurstu.2012.04.003
13. Walker RC , Howard K , Morton RL , Palmer SC, Marshall MR, Tong A. Patient and caregiver values, beliefs and experiences when considering home dialysis as a treatment option: a semi-structured interview study. Nephrol Dial Transplant.2016; 31: 133–141 doi: 10.1093/ndt/gfv330
14. Huré F. Mountain in the blood. Bull Dial Domic [Internet]. 2019Apr.10.DOI :10.25796/bdd.v2i1.19153
15. Sauvé C, Vandyk AD, BourbonnaisFF. Exploring the facilitators and barriers to home dialysis: A scoping review. Nephrol Nurs J.[En ligne]. Jul-Aug 2016[cité le 14 mai 2021] ; 43(4):295-308. Disponible : https://www.researchgate.net/publication/306822814
16. Combes G , Allen K , Sein K , Girling A , Lilford R. Taking hospital treatments home: a mixed methods case study looking at the barriers and success factors for home dialysis treatment and the influence of a target on uptake rates. Implement Sci Commun.2015 ;10(148).doi : 10.1186/s13012-015-0344-8
17. Picault C. Dialyse longue nocturne à domicile à bas débit de dialysat. Bull Dial Domic [Internet]. 2019Apr.10.DOI : 10.25796/bdd.v2i1.19143
18. Jacquet S,Trinh E. The Potential Burden of Home Dialysis on Patients and Caregivers: A Narrative Review Can J Kidney Health Dis. 2019 Dec 18;6:2054358119893335. doi: 10.1177/2054358119893335
19. Bennett PN, Eilers D, Yang F, Rabetoy CP. Perceptions and practices of nephrology nurses working in home dialysis: An international survey. Nephrol Nurs J .[En ligne]. Sep-Oct 2019 [cité le 14 mai 2021] ; 46(5):485-495. Disponible : https://pubmed.ncbi.nlm.nih.gov/31566344/
Published
2021-07-10
How to Cite
1.
Mougel S, Tabibi H, Rosier M. Narrative interviews to assess quality of life in Peritoneal Dialysis. Bull Dial Domic [Internet]. 2021Jul.10 [cited 2022May17];4(3):165-73. Available from: https://www.bdd.rdplf.org/index.php/bdd/article/view/62223